LOVE4LIMBS - RESOURCES
MEDICAL DIAGNOSIS & TREATMENT



 Shriners Hospitals for Children – Northern California
http://shrinerschildrens.org/conditions-treatments/pediatric-orthopaedics/hand-arm-shoulder/

 

Congenital Hand Anomalies via Johns Hopkins NetOrthoDoc (www.netorthodoc.org)

http://www.netorthodoc.org/2LochnerCongenital%20Hand6UpForPrint.pdf

 

Congenital Hand Differences, The Hospital for Sick Children in Toronto, Ontario.

http://www.aboutkidshealth.ca/En/HealthAZ/ConditionsandDiseases/MuscleBoneandJointDisorders/Pages/Congenital-Hand-Anomaly.aspx

 

Texas Scottish Rite Hospital for Children  

http://www.tsrhc.org/Hand-Disorders

 

American Society for Surgery of the Hand

http://www.assh.org/Public/HandConditions/Pages/CongenitalHandDifferences.aspx

 

Via Childern’s Hospital Boston.

http://www.childrenshospital.org/az/Site1108/mainpageS1108P0.html

 

Cleveland Clinic – Congenital Hand Differences

http://my.clevelandclinic.org/disorders/congenital_hand/or_overview.aspx

 

Shriner’s Hospital for Children (12 locations)

http://www.shrinershospitalsforchildren.org/en/care/orthopedics

CONNECTION & SUPPORT

International Child Amputee Network (I-CAN), a tax exempt, 501(c)(3) organization, is dedicated to promoting education, support, information, and empowerment to traumatic and congenital limb different children and their families. I-CAN is committed in bringing together these children and their families to enhance the quality of life for the children and young adults based on the concept of mentors helping families, parent helping parents, and kids helping kids.

http://www.child-amputee.org

 

DysNet is the global network connecting anyone who is personally or professionally affected by congenital limb deficiency.  The site is inclusive, communicative and collaborative.  This is the place where you can find information, contribute your own thoughts and ideas and join the conversation.

http://www.dysnet.org/

 

C.H.I.L.D  is a nationally recognized charitable organization for parents or care providers of a child with limb differences. Our main purpose is to provide support to parents in the form of a networking system that matches them with other parents whose children have the same or similar condition.

http://www.childorg.net.au/

 

 ‘REACH’ aims to provide the affected families with the opportunity to get together, share experiences and information about what to do (or not to do) and where to go for advice regarding treatment and to help them realize that they are not alone. Based in the UK, Reach touches families’ lives from all over the world.

www.reach.org.uk

Helping Hands Foundation–  The philosophy of the Helping Hands Foundation is to provide support and information.  A special bond often develops between parents, affected children and their siblings when families get together to share ideas and experiences.  Family outings are planned for all to enjoy.  These social events offer an informal atmosphere for parents to meet each other and for children to interact with one another.  In addition, relevant topics and issues are addressed through newsletters and speakers.

http://www.helpinghandsgroup.org/    

 

Little Hand Big Heart
Making people aware of Amniotic band Syndrome one Little Hand at a Time.

 http://littlehandbigheart.com
Super Hands

Profiles of children with a variety of upper limb disabilities. You can email the children’s parents directly.

Superhands.us

 

Limb Differences    

Message Board with an orthopedic surgeon who specializes in congenital and pediatric upper extremity problems. You have to be a member to post on the message board, but you can read the entries without joining.

limbdifferences.org

 

 

Unlimbited Possibilities is a community where families of children with upper limb differences can gather to offer support and share information.

unlimbitedpossibilities.org

 

 The AUSSIE HANDS Foundation Inc offers. support for children and adults with hand differences; provide opportunities for networking and exchange of information.

http://www.aussiehands.org/

 

 

Limbkids Support Association Inc is a non-profit, voluntary organisation based in Queensland; Australia is comprised of parents, professionals and interested people concerned with the care of children who have congenital or acquired limb differences.

http://www.limbkids.asn.au/

 

Pikes Peak Amputee Connection is dedicated to connecting with individuals and their families when facing limb challenges and differences.

http://www.ppaccs.com/

 

 

Colorado UnLimbited Children is a part of Colorado UnLimbited Connection, a Colorado Nonprofit Corporation, founded by and for the families of children with limb differences – whether from birth, medical condition or unfortunate accident.  We provide a community where families of children with limb differences gather to offer support and share information in order to better meet the emotional and social needs of both our children and our families.

http://www.unlimbited.org/

 

 

Little Fins: Discussion and support group for parents of children with upper limb differences. Originating from the Little Fins group in Minnesota, but open to anyone.

http://www.littlefins.org/

 

 

Sammy’s Friends is a support group created for the support of those affected by congenital limb differences.

  http://health.groups.yahoo.com/group/SammysFriends/

 

The mission of the Nebraska Children with Upper Limb Deficiencies (NCULD) organization is to bring Nebraska families with children who have upper limb differences together for mutual support and life-long friendships and to educate both the parents and children throughout life’s different stages.

  http://nculd.org/

 

 

So What is a campaign to raise awareness for amputees and limb-different individuals on behalf of the Amputee Coalition of America. The idea is that even though we may have a physical difference, we have just as much to offer as anyone else.

 http://www.sowhatcampaign.org/

 

On the Other Hand I Have a Thumb was created by a registered and licensed occupational therapist (OTR/L), and a certified weight trainer who also has a congenital hand anomaly.This website provides information, support, and suggestions for parents, relatives, and friends of children with hand anomalies.

  http://www.ontheotherhand.org/index.html

PROSTHETICS & ADAPTATIONS

Hanger Orthopedic Group, Inc. is the world’s premier provider of orthotic and prosthetic (O&P) services and products, offering the most advanced technology, clinically differentiated programs and unsurpassed customer service. Owning and operating hundreds of patient care centers nationwide, Hanger’s business also includes distribution centers and the largest O&P network management company in the country.

http://www.hanger.com/Pages/default.aspx

 

Another Way To Play – Instrumental Adaptations for Musicians with Limb Differences

https://sites.google.com/site/instrumentadaptations/home

 

 E-Nable is A network of passionate volunteers using 3D printing to give the World a “Helping Hand.

http://enablingthefuture.org/

CAMPS & ATHLETICS

Hands To Love is a Florida 501(c)(3) congenital hand anomaly organization dedicated to bringing families together to create a safe haven in which kids with congenital hand differences can share experiences and develop a support network.

http://www.handstolove.org/

 

Camp No Limits is a non-profit organization 501 (c)(3) providing camps for children with limb loss, and education, mentorship, and support to these children and their families.

www.nolimitsfoundation.org

 

Cincinnati Adaptive Music Making Excellence in Music Accessible for All

https://cincinnatiadaptivemusic.wordpress.com/

 

Sportable is a non-profit in Richmond, VA dedicated to providing adaptive sport and recreation opportunities, events, & competitions…help us break down barriers one sport at a time!!

http://sportable.org/ 

 

Challenged Athletes Foundation

Charity providing grants to athletes with a physical disability. History, news, grantees, newsletter and how to apply for funds.

 http://www.challengedathletes.org

 

I Am Adaptive

Non-Profit Organization by ADAPTIVE Athletes striving to build a Strong Global Community and Raise Awareness for the ADAPTIVE Movement.

www.iamadaptive.com/

 

NubAbility Athletics

The purpose of NubAbility Athletics is to encourage, inspire, and instruct congenital and traumatic amputees who have the desire to compete in organized sports. An important goal of ours is to network not only with children that want to learn to play, but also with accomplished limb different athletes across the country. We understand the power of mentorship.

http://www.nubability.com/